Tuesday, April 20, 2004

 

Going Great!

Devin had an appointment today and is doing just wonderfully. His blood pressure remains down, his weight is up and his overall progress is just great.

We are starting to taper down his steriods. This is the beginning of the tapering of his medications, a process that will take about 9 months.

We stopped over at the floor to see Miss Yolanda, who came out to hug on him. The new unit is closed to non-patients under the age of 16 so when we visit, we call and the nurses come out.

After we got back home, Devin went to school for a few hours before being pulled out early to go see another one of his nurses, Miss Tony. Miss Tony no longer works at Vanderbilt but was in town today. She has not seen him since August, when he was still in the hospital and was just so suprised at how good he looks.

Devin brought home his first folder of work from school and is maintaining his grades just fine. He does have to study a bit more than his sister does but he actually gets better grades. She tends to rush while he takes his time.

The next big thing we have coming up is on Saturday. Devin is taking part in the Cub Scout Cubmobile race. Later that evening, Devin, Nicholas and Ryan will be getting baptized. We had to wait until Devin could attend Church again to have this done and they are looking forward to it. We have everything planned and will be doing the final steps on Friday.

Look for an update (and maybe pictures) early next week. Our next appointment is on May 11.

posted by Devin's Mom 5:27 PM

Tuesday, April 13, 2004

 

Snow!

We woke up to snow today and it stayed snowing all day long. I think we got about 3" total and the schools closed early. This is just crazy weather!

Devin began school again on Monday. After a few minor hitches in making sure the correct paperwork was on hand, he went off to class shortly after 9 am. He is really enjoying being back at school.

We got back spring school pictures. You can take a peek at them Click Here

Devin had Scouts tonight, we were going to work on the car for the Cubmobile race next week but the weather cancelled that out. Instead, the boys played a bunch of games and then had snack.

Our Pharmacy gave us some grief about one of Devin's medication, said they can't get it and we would just have to find someplace that would. After talking to our case manager at the hospital there, we can pick up the medication tomorrow. Seems they were able to get it after all.

We have an appointment next week so look for an update around then!

posted by Devin's Mom 8:29 PM

Sunday, April 11, 2004

 

Hapy Easter!

We hope that everyone had a great holiday. We are currently waiting on dinner.

Devin and the rest of the gang woke up early and raced down to find baskets. Their egg hunt had to wait until we got back from Church. Today was the first time in well over a year that Devin got to stay for his class. He, along with the rest of the kids in Primary, got little goodies from their teachers. After lunch, 5 of the kids raced around the backyard finding various plastic eggs and hardboiled eggs.

While we were at Church, Iain was home with Dad since Iain was running a fever. He helped himself to assorted treats in baskets that were not his own while Dad was otherwise engaged. Devin boo hooed and was very upset that Iain ate his Peeps

Tomorrow is the big day, Devin gets to go back to school! It may take us more than a few minutes since I am not sure if the school will accept a faxed letter from Dr Frangoul saying Devin can not have vaccines or if we will have to get it transferred to a green Tennessee Vaccine Record. We will find out tomorrow!

posted by Devin's Mom 4:06 PM

Thursday, April 08, 2004

 

Housekeeping

I just realized that some of the links over on the left were still being hosted on an expired domain. I have transferred those pages so they are current. I still need to go in and update the links on the individual pages but the ones on the left are correct. I had moved them from where they are on my hard drive and it took some searching to find the pages.

Devin is on spring break right now with the rest of the kids. He is so excited to be going back to school on Monday. I will be driving him and picking him up rather than have him ride the bus.

posted by Devin's Mom 9:42 AM