A Day in the Life of Devin
Just a short little page to update family and friends on Devin's progress while undergoing treatment for a relapse of leukemia and his second bone marrow transplant. Devin is currently in remission and we plan to keep him there FOREVER!
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Devin Pictures
Devin Photo Album 1-10
Devin's Quilt of Love
Next Clinic Appointment:January 15, 2008
Devin's mood today was:
Visit some of our friends!
Barrett
Joshua
Angel Ryan
Angel Connor
| CURRENT MOON lunar phases |
Monday, May 31, 2004
Finally! Photos!
Yes, I finally uploaded some pictures of our Make A Wish trip that we took back in January. Keep in mind that this is a work in progress and new photos will be added as I edit and upload them.
There is a link to the album over on the left.
Wednesday, May 12, 2004
Doing Great Still!
Devin has his visit today down at Vanderbilt. He has gained a pound in the past three weeks, which is great! He is doing really well overall.
His hands and arms have a rash on them right now, from exposure to the sun. Even though we are diligent with putting sunblock on, keeping him in shade during the hot part of the day, he still is getting too much sun. I got him a pair of batting gloves to wear out and plan to make some mesh type sleeves that can go on a t-shirt to keep his arms covered but still be somewhat cool. This also means no shorts for Devin....which is not fun when you consider our weather and humidity level. He can swim in the pool....just not between about 11 am and 3 pm, to avoid the hottest part of the day. This stinks for him but his other option is to stay inside all the time so he is pretty accepting of the few restrictions he does have.
His prednisone has come down again, he is down to 10 mg every other day. We are swiftly approaching our one year from transplant date so his next appointment will be the big work up where everything is looked at. It promises to be a long day!
There is a great group of ladies on the internet called Quilts of Love They make virtual quilts for children. They have made one for Devin! Devin's Quilt I will be placing a permanent link over on the left as well.
The weekend of April 30-May 2, we went camping. Devin and the rest of the gang stayed in tents during a Cub Scout Pack camp out. The weather was very nice until Saturday night, when we got pouring rain. We stayed out in it and had fun playing cards in our tent. While on the camp out, Devin earned his World Conservation Patch, which he will recieve on May 23 when he crosses over to become a Bear Cub Scout.
I have some updated pictures and plan to get some up in the next few days so be sure to check back in.
