Just a short little page to update family and friends on Devin's progress while undergoing treatment for a relapse of leukemia and his second bone marrow transplant. Devin is currently in remission and we plan to keep him there FOREVER!
Our Devin is still cruising along, doing wonderfully. His skin is looking so much better. Dr. Frangoul was very pleased with how the redness in his arms is all but gone. Even slathering on sunblock, his arms are still getting sun, which causes the redness. We still have a few spots on his face but over all, he looks great.
Devin gained a teeny bit more weight, a few ounces, but any gain is great. We did not get his counts back but I assume they are fine since no one called to tell me otherwise.
Devin continues his prograf taper, we are down to .9 twice a day. Woo hoo! I think we will be totally off it in February sometime. Since he is coming down on his prograf, I was told to not renew his amoxicillan and just stop it when the current bottle we have runs out. That means one less medicine to take on a daily basis. Slowly but surely we are dropping medicines.
We are up in the new clinic now, the office switched from being up on the inpatient floor to the doctor office building. It was the first day in the new clinic so everyone was wandering around, somewhat lost.
Kierynn surprised me by willingly giving Dr. Frangoul a hug when he asked for one. She is rather standoffish so I was not expecting her to do that.
Our power was out from 7:15 pm until 5:40 am...got a wee bit chilly in the house!
Since everything is looking good, we have out next appointment in 2005. posted by Devin's Mom
11:43 PM