Friday, July 30, 2004

 

Back from Vacation!

After the minor fiasco of a deleted post, I am back finally to update it.

Devin went to Camp Horizon and had a wonderful time. We got a CD full of pictures but since there are several hundred on there, I have not had the time to go through them all to find ones that feature Devin. I will get to it..eventually.

After Camp Horizon, it was time to gear up to go out on our vacation to Salt Lake City, Utah. Devin and all of the kids were great while we were on the road. Great for the most part, don't fool yourself thinking they were angels. We had fights and arguments along the way but considering we drove more than 1500 miles one way, they did wonderful.

While in Utah, we got to visit loads of family, Great Grandma, Uncles, Aunts, Cousins, Grandpa and more distantly related folks. We went to an amusement park, to Temple Square, to a Historic Farm and just kinda hung out.

We got back home the evening of July 27th. On the 29th, we were down at Vanderbilt for the premiere of Devin's video. This is the video that was film as a tour of some of the lesser known features of the hospital. The video is about 5 minutes long and came out very well. I have a lot of copies and some have already been mailed out to family members. Donna, who produced the video, said that it will be online at some point. During the premiere, there were photos taken and as soon I get copies, I will post some for everyone to see.

Today, the 30th, Devin had both a opthamologist appointment and his regular clinic visit.

We saw the pediatric opthamologist first, to see how bad his cataracts are and if anything needed to be done. As we already knew, the cataract on Devin's right eye is larger than the one on his left eye. The surprise was that Devin's vision is as good as it is. His right eye, the "bad" one, still has 20/30 vision, which would make him legal to drive still if he was of driving age. Since his vision is pretty much fine at this point, there is no reason to rush into surgery. At some point, it will be needed but for now, we are just going to wait and see. We have a return appointment in October to see if the cataracts have changed any.

After we changed parking garages since we had to go from one building to another, we dashed inside to meet up with Donna and Monroe Carroll. Mr. Carroll is the gentleman who the new hospital is named for. He has seen Devin in several of the videos and had been wanting to meet Devin but our schedules just never matched up. Today he was in the hospital with some nuns who were donating knitted items for premature babies. Along with the sisters, Mrs. Carroll was with him as well. He and Devin chatted for a few moments, Devin got some shirts and Donna took some photos. He is a very nice gentleman who seemed to enjoy meeting Devin.

The clinic visit, while incredibly long while waiting, was uneventful. Devin is about the same as far as weight and everything is looking good. We are continuing to taper down one of his drugs and the 11th of August will be his last day taking it. Once that drug is finished, we will begin to taper his other meds.

Thanks for being patient during the long wait for this!

posted by Devin's Mom 9:42 PM