A Day in the Life of Devin 
    
Just a short little page to update family and friends on Devin's progress while undergoing treatment for a relapse of leukemia and his second bone marrow transplant. Devin is currently in remission and we plan to keep him there FOREVER!

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Next Clinic Appointment:January 15, 2008
Devin's mood today was:The current mood of noveil4me at www.imood.com

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Tuesday, November 30, 2004

 
2 More Pounds

Devin is continuing to gain weight. He was up to 57 lbs today, which is fantastic. It is great to see him looking good.

We stopped to see Miss Yolanda and had a surprise, Nurse Anthony was there too! Anthony usually works the night shift so the only time we see him is the rare occasion we see him in our local Wal-Mart. Yolanda said that Devin was feeling like a solid guy, which he is.

We are still doing his prograf taper and have the protonic ointment for his face. Bad mom wasn't as dilligent as I should have been over the holiday so his GVH is still lingering. It is just a few spots on his face and hands so I have the oinment out to be sure he has it put on daily.

All of Devin's counts are looking fine and we will go back in 2 weeks. Ugh, just when we start to go longer between visits, we get a GVH flare up and are back to every two weeks. I will still take that any day over the twice a week visits!

At our next appointment, on the 14th, we will be up in the new doctor offices. Since the move to the new hospital, the clinic has been temporarily housed in a patient area, the exam rooms being actual patient rooms. The clinic is supposed to move on the 13th though so we should be up there in the new offices rather than up on the 6th floor.



Thursday, November 25, 2004

 
~* ~* HAPPY THANKSGIVING! *~ *~




Wednesday, November 17, 2004

 
Tooth Fairy!

When we got back from Vanderbilt yesterday, the dentist called. Devin had an appointment in December to get two baby teeth pulled in effort to encourage some of his adult teeth to move forward. They had a cancellation for today so after jumping through some major hoops, we were able to get him in at 8 am.

The appointment was actually very quick, we were in and out in less than 40 minutes. Devin was quite disappointed that he had to go to school after all. He felt he should be able to stay home but the dentist gave the thumbs up to go to school.

Even with the two teeth gone, there is really not much different in the way Devin looks. Hopefully the two teeth will move forward now that the baby teeth are out of the way.

Devin is very happy to have his dad back home again too!



Tuesday, November 16, 2004

 
Going Well

Devin had an appointment today. Things are still going great. He does have a bit of GVH going on, which I had suspected. It is nothing major, just some dry skin on his face. Dr. Frangoul gave us a prescription for a topical version of Prograf to put directly on the areas. It does not get absorbed so we will just contine Devin's prograf taper on schedule.

Devin delivered some of his popcorn today. Miss Linda was up on the floor and able to say hi to us but we missed seeing Miss Yolanda.

While at the appointment, Devin talked to Dr. Frangoul about growing up in another country. For Cub Scouts, Devin is learning about different languages and cultures. One of the requirements is that he learn 10 words in a different language. Greg translated the Cub Scout Promise into Arabic and Devin has been working on learning it.

Since we have a bit of GVH going on, we will be back up here on the 30th!





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