Tuesday, February 22, 2005

 

Four Years and An Appointment

Four years ago, today, we made our very first trek down to Vanderbilt. It was then that we were told that Devin had leukemia. In some ways, it seems so much longer than 4 years and in other respects, it doesn't seem like it could possibly be 4 years. We sure have come such a long way and been down some rocky paths. We feel very blessed that Devin continues to do so well and is such a normal kid.

Yesterday, we came down so Devin could tape some spots for the radioathon. We spoke to the DJ's for about 30 minutes. Devin, being that ham that he is, had no qualms about chatting away. The actual radioathon will be held in March. We are going to schedule a time to come down for a live interview during it.

While we were at Vandy, we went up and had a visit with Nurse Anthony and Nurse Linda.

Devin had his regular appointment today. Yesterday, after we got back from Nashville, he was feeling a bit under the weather. Everyone seems to be battling a sinus crud and he is no exception. He was running no fever so I left him alone. His blood work today showed an elevated white count, a sign of him fighting infection. It was not a big surprise but we had him tested for the flu to be sure. That came back negative, he doesn't have the flu. More than likely, it is just a sinus infection. Dr Frangoul said to just give him some Sudafed, Tylenol if he is uncomfortable but to let it run its course. Of course, if Devin develops any other symptoms, then that changes things.

We have dropped several of his medications, he is now only taking Acyclovir and Magnesium daily. He will continue to take his Bactrim twice a week. His skin GVH is almost cleared but it comes and goes. Basically, as long as it is doing this, Dr Frangoul is not overly concerned about it.

Our next appointment will be March 22. I am sure we will have some update prior to that time though, to tell about his live interview and other things going on.

posted by Devin's Mom 10:09 PM

Saturday, February 19, 2005

 

Radio Star

If you recall, almost 2 years ago, Devin took part in a radio pledge drive. August 23, 2003 The hospital and a radio station are doing this again and contacted Devin to see if he was interested in taking part once more. Monday, we are going down to Vanderbilt so he can tape some spots to air prior to the pledge drive starting. Tuesday he has his regular clinic visit.

posted by Devin's Mom 12:58 PM