Just a short little page to update family and friends on Devin's progress while undergoing treatment for a relapse of leukemia and his second bone marrow transplant. Devin is currently in remission and we plan to keep him there FOREVER!
Devin had a dentist appointment today. He normally doesn't get x-rays unless the dentist sees a need for it so we hoped it would be a fairly short visit. He did get a good tooth cleaning and a general look over.
The dentist said that since his last visit in October, he has two teeny cavities starting so we are bringing him back to have them filled. He has some molars that were partially sealed (since they were only partially out) last time. Those molar are fully out now so when he comes back for his fillings, he will have them sealed the rest of the way. Sealing helps prevent cavities in the molars.
Since he is off all of his drugs now, we can start working on getting his mouth into order. Devin has a crossbite and his mouth is crowded. We can take him to an orthodontist now but really, they can't do much more than the dentist can until he has more baby teeth fall out.
At his next appointment, Devin will also get some impressions made of his mouth so the dentist can build an expander for his mouth. This is an appliance that will be fitted to the roof of his mouth and attach to his teeth. It will have a little key and we will turn it on a regular basis to expand his mouth out, hopefully push some of his teeth into a better position and get him ready for orthodontic work in a few years. Of course, before any of this happens, I will reconfirm with Dr. Frangoul that we do have a green light to do all this. His next dental appointment is not until September so it is not a great rush.
Devin has also been in the pool quite a bit and has gotten so much more relaxed and comfortable in it. We have a new deck built and he will jump into the pool now (unless Dad is around, Dad frowns on jumping in from the deck), he dog paddles and has been working on holding his breath under water. Just a few weeks ago, he didn't even like to put his face near the water.
His next big adventure will start next Sunday, when he heads off for a week of Camp Horizon. He loves going to Horizon and looks forward to going every year. He will return from Horizon on June 17th and then head out almost immediately for Webelo Resident Camp with Scouts. He gets a break from camps until August, when he will go to a week long Twilight Camp for Scouts. Twilight is only for a few hours an evening but still a lot of fun for Devin. posted by Devin's Mom
6:07 PM
Saturday, June 04, 2005
Relay For Life
Devin took part in the American Cancer Society Relay for Life yesterday. This is a 12 hour event to raise money for ACS. His Cub Scout Pack took part as well. We were out there for 7 hours, walking laps. Devin was a trooper and walked laps, talked to people and played in the field.
Devin was called up as a survivor and presented a survivor medal by the mayor. He was also chosen as one of the survivors who held the ACS Relay banner for the first lap. I am guessing since he was the youngest survivor out there, it was easy to spot him. A local reporter interviewed Devin so our man once more was in the paper. Here is a link to the article as well as a few photos of the event. Bad Mom forgot to bring her camera so I don't have any personal pics.
Becky called us yesterday with some results of Devin's 2 year work up. His bone marrow is 100% donor, 100% Ryan. That is fantastic news, just what we wanted to hear. His anniversary is coming up on the 9th. Since we didn't hear results from his pulminary function test or his echo cardigram, we assume the results are fine.
Tomorrow Devin will be taking part in a local Relay for Life, an event to raise money for the American Cancer Society. We will have a luminary in his honor as well as a few for some special loved ones. Devin will also be taking part in the survivor walk and walking as part of a team for Cub Scouts. posted by Devin's Mom
7:28 PM